An Ordinary Day: Kids with Rare Genetic Conditions

Karen Haberberg
Introduction by Daniel Macarthur

$ 45

Order from the powerHouse Shop  

Trim Size: 12 x 9
Page Count: 176
ISBN: 68941969781576878613

An Ordinary Day displays photographs set against intimate conversations, presenting the stories of 27 families living with children with rare genetic conditions. Readers will fall in love with each child, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book–featuring interviews, along with unforgettable photographs–presents a transfixing narrative of struggles failed and battles won. These brave children include Ethan, a 7-year-old who is nonverbal, as he learns to sign to communicate his needs; Jonathan, a 9-year-old, as he finally is able to eat with a spoon after many failed trials; and Madison, a 5-year-old, as she takes her first step after years of crawling. These are all tasks that are taken for granted by families and children without these disorders, but are immense accomplishments and triumphs for children afflicted with rare genetic conditions. The intimate portraits in An Ordinary Day will inspire hope, empathy, and gratitude in all of us.

Piercing and unforgettable, An Ordinary Day illuminates what it means to be a family.


Karen Haberberg is a New York City-based portrait photographer. Her photography has been shown in numerous gallery exhibitions, magazines, and newspapers including The New York Times, Wall Street Journal, The Daily News, Huffington Post, Time Out NY, Daily Mail, Cosmopolitan, New York Family, and Fit Pregnancy. Her work was recently featured on ABC News and NY1. In addition to her freelance photography work, Haberberg teaches photography at the 92Y and JCC of Manhattan. For nearly a decade, she served as the Director of Photography and Digital Media at the Jewish Community Center in Manhattan, where she spearheaded photography related programming for children and adults. Haberberg has also curated numerous exhibitions and collaborated with well-known photographers such as Annie Leibovitz, Elliot Erwitt, Joyce Tenneson, Gillian Laub, Bruce Davidson, among others. Haberberg holds a BA from Brandeis University and earned her MA in Art and Photography from the ICP. She lives in Manhattan with her husband and two children Maya and Liam. For more information, visit Karen’s website at http://www.karenhaberberg.com.

You might also like: